Let's discuss housing. I know it's a time of high inflation and such, but this is not the first time inflation has been around (unfortunately). This is also not the first time that cancer has been around (also, unfortunately). However, as far as Jim and I can tell from our conversations with other pediatric cancer families and foundations/organizations/nonprofits, there is no assistance for families in regards to housing other than helping with rent/mortgage payments and house cleaning (don't get me wrong - this is a HUGE blessing and we are super grateful recipients of these types of assistance!!).
What I mean when I refer to "housing" is assistance something similar to Habitat for Humanity (only for pediatric cancer families instead). For example, what if sarcoma families have a child with an amputation and they need a wheelchair ramp installed for their house? Or what if there are home repairs that need to be done but the family doesn't have the time or the finances to get the repairs done? Or what if the family is renting and has a landlord/manager who won't make repairs (or worse, makes the repairs and then, surprise - sends the bill to the family)? Or what if the house is too small for the family-size? Or what if the kitchen is too small to prepare the types of meals that their child's new dietary plan requires (storage for appliances, pantry space for ingredients, etc.)? Or what if there are pests (especially cockroaches) and the landlord won't pay for an exterminator and the family can't afford it? What if the house is drafty (especially in the winter)? If the pediatric cancer patient as a cathaport and gets a fever, it is an automatic trip to the ER. The list of scenarios goes on and on and on...
What Jim and I have often imagined is a small homestead with acreage and space for our eight children, future grandchildren, and hosting/hospitality opportunities. We would love to have a dog, a garden (and grow our own fresh produce), and some chickens or ducks, maybe even a goat. We love our church, Jim loves his job, and the kids and I love our nonprofit exempt (home) school, so we want to stay close enough to the Omaha area to commute, but far enough away to be able to retreat and enjoy God's creation.
So what if EsthersMiracle.org becomes an official 501(c)3 nonprofit organization like NewHeartChristianSchool.org that we already run? Housing would be of upmost importance to its mission. It's already of upmost importance to our family and especially important to Esther's long-term care plan.
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