Wednesday, November 16, 2022

Housing - Pediatric-Cancer-Family Style

Let's discuss housing.  I know it's a time of high inflation and such, but this is not the first time inflation has been around (unfortunately).  This is also not the first time that cancer has been around (also, unfortunately).  However, as far as Jim and I can tell from our conversations with other pediatric cancer families and foundations/organizations/nonprofits, there is no assistance for families in regards to housing other than helping with rent/mortgage payments and house cleaning (don't get me wrong - this is a HUGE blessing and we are super grateful recipients of these types of assistance!!). 


What I mean when I refer to "housing" is assistance something similar to Habitat for Humanity (only for pediatric cancer families instead).  For example, what if sarcoma families have a child with an amputation and they need a wheelchair ramp installed for their house?  Or what if there are home repairs that need to be done but the family doesn't have the time or the finances to get the repairs done?  Or what if the family is renting and has a landlord/manager who won't make repairs (or worse, makes the repairs and then, surprise - sends the bill to the family)?  Or what if the house is too small for the family-size?  Or what if the kitchen is too small to prepare the types of meals that their child's new dietary plan requires (storage for appliances, pantry space for ingredients, etc.)?  Or what if there are pests (especially cockroaches) and the landlord won't pay for an exterminator and the family can't afford it?  What if the house is drafty (especially in the winter)?  If the pediatric cancer patient as a cathaport and gets a fever, it is an automatic trip to the ER.  The list of scenarios goes on and on and on...


Our family's housing situation answers "yes" to most of the questions above.  When we moved back to Omaha, NE from Jacksonville, FL in 2020, we were not naive and expected to rent for at least a year before being able to purchase, given the whole covid thing.  However, we are in the third year's lease now, and the housing market is not looking any more promising now than it did three years ago (if anything, it is looking worse).  Our rental is also nearly $1600 for just over 1200 square-feet with 3BR/2B/2car garage...which is what we had when we only had 2, 3, and 4 children.  Now we have 8 kids (total of 10 in the family) with three cars (and they don't fit in the garage because that is also our storage unit) and four children in each little bedroom - about 120 square feet per person in total.  The house is drafty so in the summer and winter, a large portion of our utility bills is literally being sent out the front door.  Our groceries each week barely fit in our fridge, and with the rise in rental costs, it is also a stretch every week to purchase healthy "real" food (vs. junk "fake" food) for our family and Esther's new and improved nutrition plan.  We also have a landlord who doesn't make repairs, the manager hardly responds to our maintenance requests, and the few times a repairmen has arrived, we received the bill (that's a big deterrent to even ask for maintenance).  We have had leaky pipes from repairs being done incorrectly, which have left water stains in ceilings and floors, and there is most likely mold and/or mildew which I don't even want to think about.  We also pay for the exterminator as cockroaches are rampant in our neighborhood.  We only have the space for a love seat as we don't have room for a regular couch/sofa.


What Jim and I have often imagined is a small homestead with acreage and space for our eight children, future grandchildren, and hosting/hospitality opportunities.  We would love to have a dog, a garden (and grow our own fresh produce), and some chickens or ducks, maybe even a goat.  We love our church, Jim loves his job, and the kids and I love our nonprofit exempt (home) school, so we want to stay close enough to the Omaha area to commute, but far enough away to be able to retreat and enjoy God's creation.


So what if EsthersMiracle.org becomes an official 501(c)3 nonprofit organization like NewHeartChristianSchool.org that we already run?  Housing would be of upmost importance to its mission.  It's already of upmost importance to our family and especially important to Esther's long-term care plan.


under the kitchen sink after sink flooded down to the den



water stains where the kitchen sink leaked through


fridge is overflowing and breaking (a blessing, too!)


mini couch/love seat

den living room


dead tree for two years in backyard


broken fence & gate around the backyard


girls' room


boys' room (Joshua and Jordan share a bed)


living room


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