Thank the Lord that Jim does so well at posting on Facebook nearly every single day for our baby lady. We’ve come to joke (but also, seriously) that Jim is the PR guy in the family (Public Relations, reaching out to and communicating with the community at large), primarily through social media and most of that being through Facebook posts and Messenger. I, on the other side of the scale, am the HR gal, and I handle internal affairs and make sure our individual team members are taken care of - Esther, of course, getting nearly all of that attention and energy on this quest.
While everyday is an adventure of its own accord, the journey as a whole is a quest. And a quest that all parents who have climbed this mountain have in common. This quest is the end of DIPG/DMG, and beyond that, all pediatric brain tumors, and beyond that, all pediatric cancers at large.
Here’s a sneak peak at some of the thoughts that have been stirring in my mind, which I want to give space and place to, each individually, as we continue on this quest.
- Housing - assistance for families beyond just paying partial rent/mortgage bills
- Nutrition - resetting all anatomical and physiological systems for both the short-term and long-term
- Prevention and Detection - there’s been a few mentions in the last week at CureFest about improving pediatric cancer outcomes through prevention, detection, and treatment…then all anyone actually talks about is treatment 🫤
Yes, I am a logical, academic, and solution-focused individual. Stick with me on this because I pray that somehow God is going to make it worth it for Esther and her people. 🙏🏻🎗💕
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