Wednesday, July 6, 2022

Wacky Wednesday 2

Esther slept late (late as late can be for 7am appointments 😆) and went from bed straight to the wagon.  I remembered a change of clothes for her (which she didn't use) and forgot her shoes (which she needed for a full day of appointments).  I texted, Katie, another mom from the RMH to see if she was still at the house and could grab a pair for Esther.  Katie messaged back and said that no one was at the front desk to let her into our room, but then nevermind, someone showed up and he was letting her in (praise God!).  Katie took the shoes to radiology oncology which is where both of our girls receive treatment every morning.  However, today went to diagnostic imaging for recovery instead of staying in the radiology oncology recovery room.  After Esther, Josiah and I left DI recovery, we went downstairs to get Esther's shoes from radiology oncology.  But like two ships passing each other in the night, the receptionist from downstairs brought Esther's shoes upstairs to DI for us.  So we went back to the DI recovery room, only they didn't have them...  While they made a couple of phone calls to find out exactly where the shoes went, the kids and I took a quick restroom break.  When we returned, the DI nurse told us they were at the DI front desk.  We finally got Esther's shoes!

Our last appointment was very important - we had been waiting a couple of weeks to see the endocrinologist to figure out how to wean Esther off the last of the steroid that she started when she was diagnosed by Omaha Children's.  It was scheduled for an hour and a half and ended up taking three and a half hours.  After reviewing family history, Esther's medical history and current status, and this morning's lab results, the doctor thought it best to run a stimulation stress test to make sure Esther was completely clear to stop the steroid.  This requires four blood draws - one before the test begins, another at 20 and 30 minutes, and the final one at 60 minutes.  Praise God again because shortly after we left the clinic, the doctor called and said Esther's lab results passed with "flying colors!"  So no steroids tonight, and they're going to do one final blood draw tomorrow morning to make sure her numbers are still looking good.

It was nearly. a twelve-hour day, but we had good news and Esther is receiving the all-clear to go home from all of her doctors and therapists.  How good is God??  He's the best!


Job 16:18b-21
May God always hear my cry for help!
19Even now my witness is in heaven.
The one who speaks up for me is there.
20My go-between is my friend
as I pour out my tears to God.
21He makes his appeal to God to help me
as a person pleads for a friend.

No comments:

Post a Comment

Who Are We Now?

Who are we now? Who are we now that Esther has left life on earth? Who are we now that our family is incomplete? Who are we since Esther'...